There is NOT an abscess on Hayden's brain, which means no brain surgery...yay!! Hayden finally caught his first break! His medical team is going to try a different mix of antibiotics & new dosages to see if that will cure the Meningitis. The longer he has the Meningitis, the longer his brain will remian inflamed, he will keep having seizure activity, and will remain unable to control the amounts of pretein and sodium in his blood. We need the Meningitis gone!
Prayer definitely works so keep on praying!!
Love,
Krys
Wednesday, April 30, 2008
Update on Hayden
Hayden’s CT Scan did not detect an abscess in Hayden’s brain, so his medical team is performing an MRI with contrast (dye) right now to double-check. We are hoping to have the results by tonight or early morning.
Again, please keep praying for Hayden and his family…Friday will be 6 weeks in the NICU, and anxiousness is starting to set in for everyone…we all just want him better and at home. Doctors think Hayden may have to remain in the NICU until August/September due to the numerous setbacks he has experienced.
Hayden’s courage, along with his parents’ strength, has been an inspiration to all of us. Please take a minute to leave them positive encouragement and comments, it raises their spirits when they read them!! Let’s keep our heads high and our hopes higher.
Love,
Krys
P.s. By the way, Hayden is up to 3 pounds!!!!
Tuesday, April 29, 2008
March for Babies & Hayden's scan
Team "WE LOVE HAYDEN" joined thousands of compassionate teams across the country Sunday that support March for Babies. They raised $380 for March for Babies that will support lifesaving research, services, education and advocacy that help babies get a healthy start, and help find out why premature birth happens and what can be done to prevent it. The March of Dimes mission is to improve the health of babies by preventing birth defects, premature birth, and infant mortality, and team "WE LOVE HAYDEN" has done their part!
We all would love to thank everyone who walked, donated, made the shirts ('til 1:00 a.m.)and had any part in this amazing journey. A special thanks to Latisha Gladden who created the team and motivated others to join and donate!!
Team "We Love Hayden" Roster:
Latisha (Hayden's 2nd cousin/team captain)
Lisa (Hayden's Mommy)
Dustin (Hayden's Daddy)
Sara (Hayden's Aunt)
Marshall (Hayden's adopted Uncle)
Magen (Hayden's 3rd Cousin)
Kathi (Hayden's Great Aunt)
Rachel (Hayden's 2nd cousin)
Curtis (hayden's 3rd cousin)
Cleo (Hayden's Great Aunt)
Lara (Hayden's Great Aunt)
Julian (Hayden's adopted 2nd cousin)
Dawson (Hayden's cousin)
Little Glen (Hayden's cousin)
If there is anyone I forgot, I am truly sorry and will correct & repost!!
Hayden is receiving a CT scan (like an MRI) this morning to determine why the meningitis is not yet gone...the antibiotics should have cured the infection by now. He may have an abscess on his brain, which is what the scan will be looking for. His scan is scheduled for early this afternoon, so please continue to pray for his safety and positive results!! He truly is a medical mystery-let’s keep praying for a medical miracle!
Love,
Aunt Krystal
Monday, April 28, 2008
Update on Hayden's Meningitis
As you all may know, our little Hayden has Bacterial Meningitis. Doctors are currently performing two tests on him daily:
1) Blood & Spinal fluid (in his brain): The blood and fluid is tested to determine if the bacteria are still present; currently the tests are still positive for the bacteria.
2) Blood culture: Blood is drawn and put in a petree dish to see if the bacteria are growing (spreading). As of 4/26-4/28-nothing has grown-which is a great thing.
In other words, Hayden still has Meningitis, but it is not spreading. The antibiotics are keeping the infection in control for now. His current antibiotics are:
-Ampicillin: used to prevent the growth of certain types of bacteria
-Gentamicin: used to treat infection
-Vancomycin: kills bacteria by preventing them from reproducing
Usually, these antibiotics take 3-5 days to treat Meningitis, and he has been on them for approx. 6 days. Doctors do not know why the infection has gone away-they think it could be due to a possible absess in Hayden’s brain. To determine if there is indeed an absess, Hayden will receive an MRI in the morning. If there is an absess, he will most likely be taken to Clear Lake regional’s NICU (#1 hospital in the area for this procedure).
We are not sure what to expect, but I will keep everyone posted. Please don’t panic, just pray!!! Also, I will post the results as soon as we receive them, which may or may not be available tomorrow. Doctors are keeping hayden on his seizure medicine and Morphine to control his jerky movements and keep him comfortable…the more still be is, the less calories he burns and he needs those calories!! We are hoping he will be able to begin formula again, soon!
On a more positive note, our little man is up to 2 pounds 15 ounces!!! He has grown so much, and watching him grow is the highlight of our lives!!
Thank you so much for all of your prayers and support, prayer works.
Love,
Krystal
Mark 11:22-24
22) "Have faith in God," Jesus answered. 23) "I tell you the truth, if anyone says to this mountain, 'Go, throw yourself into the sea,' and does not doubt in his heart but believes that what he says will happen, it will be done for him. 24)Therefore I tell you, whatever you ask for in prayer, believe that you have received it, and it will be yours.
1) Blood & Spinal fluid (in his brain): The blood and fluid is tested to determine if the bacteria are still present; currently the tests are still positive for the bacteria.
2) Blood culture: Blood is drawn and put in a petree dish to see if the bacteria are growing (spreading). As of 4/26-4/28-nothing has grown-which is a great thing.
In other words, Hayden still has Meningitis, but it is not spreading. The antibiotics are keeping the infection in control for now. His current antibiotics are:
-Ampicillin: used to prevent the growth of certain types of bacteria
-Gentamicin: used to treat infection
-Vancomycin: kills bacteria by preventing them from reproducing
Usually, these antibiotics take 3-5 days to treat Meningitis, and he has been on them for approx. 6 days. Doctors do not know why the infection has gone away-they think it could be due to a possible absess in Hayden’s brain. To determine if there is indeed an absess, Hayden will receive an MRI in the morning. If there is an absess, he will most likely be taken to Clear Lake regional’s NICU (#1 hospital in the area for this procedure).
We are not sure what to expect, but I will keep everyone posted. Please don’t panic, just pray!!! Also, I will post the results as soon as we receive them, which may or may not be available tomorrow. Doctors are keeping hayden on his seizure medicine and Morphine to control his jerky movements and keep him comfortable…the more still be is, the less calories he burns and he needs those calories!! We are hoping he will be able to begin formula again, soon!
On a more positive note, our little man is up to 2 pounds 15 ounces!!! He has grown so much, and watching him grow is the highlight of our lives!!
Thank you so much for all of your prayers and support, prayer works.
Love,
Krystal
Mark 11:22-24
22) "Have faith in God," Jesus answered. 23) "I tell you the truth, if anyone says to this mountain, 'Go, throw yourself into the sea,' and does not doubt in his heart but believes that what he says will happen, it will be done for him. 24)Therefore I tell you, whatever you ask for in prayer, believe that you have received it, and it will be yours.
Sunday, April 27, 2008
Wednesday, April 23, 2008
Please pray for our little miracle baby!!!
Unfortunately, we received some scary news from the Doctors last night. The infection “Group D Enterococcous” in Hayden’s spinal fluid (in his brain) had been diagnosed as BACTERIAL MENINGITIS. As many of you may know, this is a serious infectious bacteria. Hayden is currently receiving antibiotics to treat the infection. Hopefully, the Meningitis will be cured in a few days, but he will be on the antibiotics for 20-30 days.
He has been taken off of formula and being fed through an IV (like he was a few weeks ago). Hayden has been presented with so many set backs since he has been born, but is still fighting so hard for his little life. To date, he has experienced: severe brain bleeds, a rip in his gut (so he has a colostomy bag), Hydrocephalus, and now Bacterial Meningitis.
I know and appreciate that many of you have been praying for our little miracle baby-but he really needs them the most right now, and so do Lisa and Dustin-they have been so brave and strong throughout this! We will keep you updated with new information as we learn it.
Thanks for your love, support, and prayers.
Love to all,
Krystal
Tuesday, April 22, 2008
March of Dimes for Premature Babies!!
Letter from our cousin Latisha Gladden, what a wonderful person!!!
Dear Family & Friends,
For the last few years, I have participated in the March of Dimes walk; I strongly believe in the March of Dimes mission to save babies. Through March for Babies, The March of Dimes is funding important research to find out why premature birth happens and what we can be done to prevent it. We never know what God’s plan for our futures will bring. Any one of us may someday need the March of Dimes for information and support.
In the past I have walked mainly because my twin cousins, Lisa and Krystal, who were born prematurely. They fought hard to stay with us, and today they are both beautiful, strong women with their own little bundles of joy. But this year the March for Babies brings special new meaning to me with the early arrival of Lisa and her husband Dustin’s baby boy, Hayden Wayne. Hayden was born this year on Good Friday, March 21 – more than three months before his due date. But Hayden is a fighter just like his mom and aunt!
This year instead of walking as an individual, I have signed up as captain of our family walk team called, "WE LOVE HAYDEN". We would love to have all the extra legs we can, so if you'd like to sign up to walk with our team, you can register (or donate) through the team site http://www.marchforbabies.org/525669.
If you are unable to join us, please support our fundraising efforts by sponsoring me in March for Babies today to help save premature and sick babies. Donating online is fast, easy and secure; you can donate directly from my personal webpage with a credit/debit card or PayPal. Or if you prefer, I can also accept cash or check. Just click the appropriate box on my personal webpage http://www.marchforbabies.org/ditta or go through the team site shown above.
Won’t you please help us in this worthy cause? With your support, there’s hope!
Love always,
Latisha/Ditta
Dear Family & Friends,
For the last few years, I have participated in the March of Dimes walk; I strongly believe in the March of Dimes mission to save babies. Through March for Babies, The March of Dimes is funding important research to find out why premature birth happens and what we can be done to prevent it. We never know what God’s plan for our futures will bring. Any one of us may someday need the March of Dimes for information and support.
In the past I have walked mainly because my twin cousins, Lisa and Krystal, who were born prematurely. They fought hard to stay with us, and today they are both beautiful, strong women with their own little bundles of joy. But this year the March for Babies brings special new meaning to me with the early arrival of Lisa and her husband Dustin’s baby boy, Hayden Wayne. Hayden was born this year on Good Friday, March 21 – more than three months before his due date. But Hayden is a fighter just like his mom and aunt!
This year instead of walking as an individual, I have signed up as captain of our family walk team called, "WE LOVE HAYDEN". We would love to have all the extra legs we can, so if you'd like to sign up to walk with our team, you can register (or donate) through the team site http://www.marchforbabies.org/525669.
If you are unable to join us, please support our fundraising efforts by sponsoring me in March for Babies today to help save premature and sick babies. Donating online is fast, easy and secure; you can donate directly from my personal webpage with a credit/debit card or PayPal. Or if you prefer, I can also accept cash or check. Just click the appropriate box on my personal webpage http://www.marchforbabies.org/ditta or go through the team site shown above.
Won’t you please help us in this worthy cause? With your support, there’s hope!
Love always,
Latisha/Ditta
Happy Belated Birthday Hayden!!!
Hello everyone!! Just got back from visiting Hayden and thought I’d catch y’all up on some info!
First off, yesterday was Hayden’s 1 MONTH OLD BIRTDAY!!! He is still amazing everyone with his strength! He is also up to 2 lbs 12 oz and drinking 18 cc (little more than ½ ounce) of formula!! He is growing by the minute!!!
The past few days have been a little bumpy; Hayden has been very irritated and uncomfortable =( He had his first head tap (drawing spinal fluid from his brain) on Sunday and it tested positive for an infection called “Group D Enterococcous”. Nurses are trying to treat it with simple antibiotics, so please pray that they work! His temp and heart rate are still a little high, but we hope the antibiotics will lower them! Hopefully, this is nothing to be too concerned with, but will keep y’all updated…in the meantime, say a few extra prayers for him.
Keep Hayden and his family in your thoughts & prayers they still have a long journey ahead of them.
Love to all,
Krystal
Saturday, April 19, 2008
Lots of new info
Hello everyone!! Have lots of info for ya today.
Thursday, Hayden had to have his ET tube replaced. He had several Apnea spells (quit breathing) Wednesday night and Thursday morning.. Because he quit breathing so much, Doctors removed the nasal prongs and put him back on the ET tube. We have attributed this to his retrieval of Lisa and Dustin’s stubbornness =) They are going to wait a few days and try all over again!! This is just a tiny setback.
An ultrasound of Hayden’s head Friday concluded that Hayden does have Hydrocephalus, a condition in which there is too much spinal corn fluid in the ventricles. This occurs when the natural system for draining and absorbing extra fluid does not work right. The ventricles enlarge to accommodate the extra fluid and then press on different parts of the brain, causing a number of different symptoms. This condition was caused by Hayden’s brain bleeding. Doctors are preparing a medical plan, which may consist of transferring him to Clear Lake Regional’s NICU (who has the best neo Drs.) when he is 4 pounds.
Treatment will start with antibiotics (which will probably not work). Next, Doctors will “tap” (insert a needle) Hayden’s head twice a week to releive the pressure and fluid. Current treatment also includes surgically inserting a shunt system. This system diverts the flow of fluid from the brain ventricles to another area of the body where it can be absorbed as part of the normal circulatory process.
A shunt is a flexible but sturdy plastic tube. A shunt system consists of the shunt, a catheter, and a valve. One end of the catheter is placed within a ventricle inside the brain or in the CSF outside the spinal cord. The other end of the catheter is commonly placed within the abdominal cavity, but may also be placed at other sites in the body such as a chamber of the heart or areas around the lung where the fluid can drain and be absorbed. A valve located along the catheter maintains one-way flow and regulates the rate of fluid flow. This will most likely happen in June.
On a positive note, Hayden is up from 1.6 to 6 CC of milk/formula!!! He is growing SO MUCH and keeps packing on the ounces!! He is cute as ever (of course) and loves his Granny Grump! He held her hand for a long time Friday!!!
Thanks for keeping updated everyone!!
Thursday, Hayden had to have his ET tube replaced. He had several Apnea spells (quit breathing) Wednesday night and Thursday morning.. Because he quit breathing so much, Doctors removed the nasal prongs and put him back on the ET tube. We have attributed this to his retrieval of Lisa and Dustin’s stubbornness =) They are going to wait a few days and try all over again!! This is just a tiny setback.
An ultrasound of Hayden’s head Friday concluded that Hayden does have Hydrocephalus, a condition in which there is too much spinal corn fluid in the ventricles. This occurs when the natural system for draining and absorbing extra fluid does not work right. The ventricles enlarge to accommodate the extra fluid and then press on different parts of the brain, causing a number of different symptoms. This condition was caused by Hayden’s brain bleeding. Doctors are preparing a medical plan, which may consist of transferring him to Clear Lake Regional’s NICU (who has the best neo Drs.) when he is 4 pounds.
Treatment will start with antibiotics (which will probably not work). Next, Doctors will “tap” (insert a needle) Hayden’s head twice a week to releive the pressure and fluid. Current treatment also includes surgically inserting a shunt system. This system diverts the flow of fluid from the brain ventricles to another area of the body where it can be absorbed as part of the normal circulatory process.
A shunt is a flexible but sturdy plastic tube. A shunt system consists of the shunt, a catheter, and a valve. One end of the catheter is placed within a ventricle inside the brain or in the CSF outside the spinal cord. The other end of the catheter is commonly placed within the abdominal cavity, but may also be placed at other sites in the body such as a chamber of the heart or areas around the lung where the fluid can drain and be absorbed. A valve located along the catheter maintains one-way flow and regulates the rate of fluid flow. This will most likely happen in June.
On a positive note, Hayden is up from 1.6 to 6 CC of milk/formula!!! He is growing SO MUCH and keeps packing on the ounces!! He is cute as ever (of course) and loves his Granny Grump! He held her hand for a long time Friday!!!
Thanks for keeping updated everyone!!
Wednesday, April 16, 2008
Tuesday, April 15, 2008
Lisa FINALLY Got to Hold Him!
Dear all,
Lisa was able to hold Hayden this afternoon for the first time!!! She said it was the best experience of her life!! She was able to hold him (skin to skin) for a whole HOUR (even though she said it only felt like 2 minutes!) We are all so happy for her, and know how great it must be to hold her baby for the first time ever!!!
Unfortunately, Dustin was not able to hold Hayden because the NICU is only doing “Kangaroo Mother Care” right now because Mommy and baby were not able to experience the Motherly bond at birth (like most babies). The NICU is hoping this will also increase Lisa’s milk supply and Hayden’s sucking reflexes just by the physical contact. We will be just as excited when Dustin is able to hold him, which will hopefully be soon!!
I will keep you guys updated with Hayden’s miracle journey and upload pics of Mommy and Hayden soon!!
Love,
Krystal
Lisa was able to hold Hayden this afternoon for the first time!!! She said it was the best experience of her life!! She was able to hold him (skin to skin) for a whole HOUR (even though she said it only felt like 2 minutes!) We are all so happy for her, and know how great it must be to hold her baby for the first time ever!!!
Unfortunately, Dustin was not able to hold Hayden because the NICU is only doing “Kangaroo Mother Care” right now because Mommy and baby were not able to experience the Motherly bond at birth (like most babies). The NICU is hoping this will also increase Lisa’s milk supply and Hayden’s sucking reflexes just by the physical contact. We will be just as excited when Dustin is able to hold him, which will hopefully be soon!!
I will keep you guys updated with Hayden’s miracle journey and upload pics of Mommy and Hayden soon!!
Love,
Krystal
A HUGE Milestone!
Dear all,
Nurses were able to remove Hyaden’s ET tube (the large tube in his mouth & down his airway) and replace it with CPAP (Continuous positive airway pressure) nasal prongs last night at 12:30 a.m.!!! A nasal CPAP device consists of a large tube with tiny prongs that fit into the baby's nose, which is hooked to a machine that provides oxygenated air into the baby's air passages and lungs. The pressure from the CPAP machine helps keep Hayden’s lungs open so he can breathe. However, the machine does not provide breaths for the Hayden, so he is breathing on his own!!! This is a major major milestone for Hayden!!
Also…we are hoping Lisa and Dustin will be able to hold Hayden for the first time today!!! It all depends on his gas test, so everyone pray for a good one!! The NICU promotes Kangaroo care, which consists of placing Hayden in an upright position on Lisa or Dustin’s bare chest. Hayden’s head will be turned so that his ear is above their hearts. Most studies have proven that Kangaroo Care has a major, positive impact on babies and their parents. Can you imagine how wonderful it is going to be for them to FINALLY hold Hayden after 3 ½ weeks of seeing him through an incubator??? What a wonderful miracle on income tax day, ha ha ha.
Also, a special thanks to everyone who stays updated on Hayden and is supporting Lisa & Dustin one way or another. This is still going to be a long and stressful journey for the young parents, and they appreciate any help and support they receive!! Thanks you!
Love,
Krys
Nurses were able to remove Hyaden’s ET tube (the large tube in his mouth & down his airway) and replace it with CPAP (Continuous positive airway pressure) nasal prongs last night at 12:30 a.m.!!! A nasal CPAP device consists of a large tube with tiny prongs that fit into the baby's nose, which is hooked to a machine that provides oxygenated air into the baby's air passages and lungs. The pressure from the CPAP machine helps keep Hayden’s lungs open so he can breathe. However, the machine does not provide breaths for the Hayden, so he is breathing on his own!!! This is a major major milestone for Hayden!!
Also…we are hoping Lisa and Dustin will be able to hold Hayden for the first time today!!! It all depends on his gas test, so everyone pray for a good one!! The NICU promotes Kangaroo care, which consists of placing Hayden in an upright position on Lisa or Dustin’s bare chest. Hayden’s head will be turned so that his ear is above their hearts. Most studies have proven that Kangaroo Care has a major, positive impact on babies and their parents. Can you imagine how wonderful it is going to be for them to FINALLY hold Hayden after 3 ½ weeks of seeing him through an incubator??? What a wonderful miracle on income tax day, ha ha ha.
Also, a special thanks to everyone who stays updated on Hayden and is supporting Lisa & Dustin one way or another. This is still going to be a long and stressful journey for the young parents, and they appreciate any help and support they receive!! Thanks you!
Love,
Krys
Monday, April 14, 2008
Guess what???
What a horrible Aunt!!! I forgot to update y’all on some important stuff!!
First of all, Lisa and Dustin have been able to become more involved with Hayden!! They are able to touch him, take his temp, and even change his diapers!! I don’t know if it is just a coincidence, but Hayden sure seems like he has gotten better since contact with Mommy & Daddy =)
Secondly, doctors were able to attach a Colostomy bag (a removable, disposable bag that attaches to the exterior opening of a colostomy (stoma) to permit sanitary collection and disposal of bodily wastes) Saturday! Yay…moving along just great with recovery!
P.s. Hayden started sucking on a pacifier today to help with his sucking reflex!!! Hopefully he'll be drinking from a bottle in a few weeks!
First of all, Lisa and Dustin have been able to become more involved with Hayden!! They are able to touch him, take his temp, and even change his diapers!! I don’t know if it is just a coincidence, but Hayden sure seems like he has gotten better since contact with Mommy & Daddy =)
Secondly, doctors were able to attach a Colostomy bag (a removable, disposable bag that attaches to the exterior opening of a colostomy (stoma) to permit sanitary collection and disposal of bodily wastes) Saturday! Yay…moving along just great with recovery!
P.s. Hayden started sucking on a pacifier today to help with his sucking reflex!!! Hopefully he'll be drinking from a bottle in a few weeks!
Sunday, April 13, 2008
Pics from tonight - Sunday
Doesn't he look so comfortable on his little belly? And look at that blond hair! We just love him!
(click on the picture to see it larger and don't forget to leave your comments, prayers or just say hi! Lisa and Dustin love to read the comments.)
(click on the picture to see it larger and don't forget to leave your comments, prayers or just say hi! Lisa and Dustin love to read the comments.)
Sunday's Update
Hello everyone!!!
Hope everyone had a wonderful and safe weekend; Hayden sure has! Saturday night (at 9:00) nurses were able to feed him breast milk (through his tummy tube), and the feedings have been successful since then (he is fed every 3 hours). He is even allowed to lie on his tummy to help better digest the milk. Of course, with any preemie starting breast milk, there is a chance of Necrotizing Enterocolitis (NEC), an intestinal infection unique to preemies (same thing Lisa had)…so let’s all pray that he avoids this speed bump!!
He now weighs 2lbs 3 oz. and will hopefully be able to use nasal respiratory help soon. I will be uploading more pics of our little guy soon!
Love to all,
Aunt krys
Hope everyone had a wonderful and safe weekend; Hayden sure has! Saturday night (at 9:00) nurses were able to feed him breast milk (through his tummy tube), and the feedings have been successful since then (he is fed every 3 hours). He is even allowed to lie on his tummy to help better digest the milk. Of course, with any preemie starting breast milk, there is a chance of Necrotizing Enterocolitis (NEC), an intestinal infection unique to preemies (same thing Lisa had)…so let’s all pray that he avoids this speed bump!!
He now weighs 2lbs 3 oz. and will hopefully be able to use nasal respiratory help soon. I will be uploading more pics of our little guy soon!
Love to all,
Aunt krys
Tuesday, April 8, 2008
Monday, April 7, 2008
Monday Update
Hello everyone! I hope you all are having a wonderful day!
Lisa, Dustin, Grandparents, and Hayden’s doctor had a meeting to discuss Hayden’s folder Saturday evening. The meeting went well and the new parents are better informed on Hayden’s medical status.
Dr. Beady believes Hayden’s brain bleeding, or Intraventricular Hemorrhage (IVH) occurred in the womb and/or during labor. Lisa went into early labor because of a severe placental separation (Placenta Abruptio). Her amniotic sac was “bulging” outside of her cervix and her body was sent into abrupt labor. During the placenta separation, the blood flow to Hayden’s brain was shut off, so his body immediately sent a large amount of blood to his brain (to compensate for the lack of) and ruptured the vessels in his brain. It is not known yet how this could or will affect Hayden later in life, all we know is he is the cutest baby in the NICU, medically speaking =)
The doctors (and us) are hopeful that he will be able to begin breast milk and have his ET (Endotracheal tube) tube taken out next week and replaced with nasal respiratory support! This will be a trial run, of course, and if it doesn’t go as planned, there’s always the week after =)
Just remember, this is going to be a very long journey for Lisa, Dustin, and Hayden and they need and appreciate all of the prayers and support possible. Let’s all try to stay hopeful, optomistic, and realistic at the same time!! HOPRElistic, there’s my new word!
I will be adding new pics soon!!!
Love to all,
Aunt Krystal
P.S. Stay HOPRElistic
Lisa, Dustin, Grandparents, and Hayden’s doctor had a meeting to discuss Hayden’s folder Saturday evening. The meeting went well and the new parents are better informed on Hayden’s medical status.
Dr. Beady believes Hayden’s brain bleeding, or Intraventricular Hemorrhage (IVH) occurred in the womb and/or during labor. Lisa went into early labor because of a severe placental separation (Placenta Abruptio). Her amniotic sac was “bulging” outside of her cervix and her body was sent into abrupt labor. During the placenta separation, the blood flow to Hayden’s brain was shut off, so his body immediately sent a large amount of blood to his brain (to compensate for the lack of) and ruptured the vessels in his brain. It is not known yet how this could or will affect Hayden later in life, all we know is he is the cutest baby in the NICU, medically speaking =)
The doctors (and us) are hopeful that he will be able to begin breast milk and have his ET (Endotracheal tube) tube taken out next week and replaced with nasal respiratory support! This will be a trial run, of course, and if it doesn’t go as planned, there’s always the week after =)
Just remember, this is going to be a very long journey for Lisa, Dustin, and Hayden and they need and appreciate all of the prayers and support possible. Let’s all try to stay hopeful, optomistic, and realistic at the same time!! HOPRElistic, there’s my new word!
I will be adding new pics soon!!!
Love to all,
Aunt Krystal
P.S. Stay HOPRElistic
Friday, April 4, 2008
Friday update
Hello everyone…I have uploaded pics from 3/28/08—4/4/08 so everyone can see Hayden’s progress! Hope you all are doing well!
Doctors removed Hayden’s umbilical lines (long, thin catheters inserted into the blood vessels in the umbilical cord used for drawing blood samples, administering fluids and medications) today, and will be trading them for one Picc line (Percutaneously Inserted Central Catheter) - A long, very thin catheter inserted through the skin into a vein for the long-term administration of fluids and/or medications. We are hoping he can start drinking breast milk next week.
Doctors are currently giving Hayden caffeine to stimulate the respiratory center of his brain and remind him to breath on his own (caffeine is used to treat apnea of prematurity). Although he has a ventilation tube still, his gas tests (a blood test used to determine the amounts of oxygen, carbon dioxide, and acidity in the blood) are getting better!
We did discover that Hayden has a small hole and murmur in his heart, but Doctors are hopeful that it will heal on its own!!
Hayden is 2 weeks old today and looking as handsome as ever! Please keep praying for this little guy!!!
Love Aunt Krystal
Doctors removed Hayden’s umbilical lines (long, thin catheters inserted into the blood vessels in the umbilical cord used for drawing blood samples, administering fluids and medications) today, and will be trading them for one Picc line (Percutaneously Inserted Central Catheter) - A long, very thin catheter inserted through the skin into a vein for the long-term administration of fluids and/or medications. We are hoping he can start drinking breast milk next week.
Doctors are currently giving Hayden caffeine to stimulate the respiratory center of his brain and remind him to breath on his own (caffeine is used to treat apnea of prematurity). Although he has a ventilation tube still, his gas tests (a blood test used to determine the amounts of oxygen, carbon dioxide, and acidity in the blood) are getting better!
We did discover that Hayden has a small hole and murmur in his heart, but Doctors are hopeful that it will heal on its own!!
Hayden is 2 weeks old today and looking as handsome as ever! Please keep praying for this little guy!!!
Love Aunt Krystal
Thursday, April 3, 2008
Just a picture
Just posting a picture snagged off Krystal's Myspace she took of baby Hayden with his eyes open. These pictures just don't do him justice, he is just 2 cute! I think in this one he was looking at his Mommy!
Wednesday, April 2, 2008
Wednesday's update...and an interesting tidbit
Hayden is doing well today...same as yesterday with better blood pressure! We are still waiting for his surgeon's evaluation and results.
He had his first bowel movement (through his stoma) late last night!!
An interesting tidbit: Hayden's surgeon, Dr. Bloss...is the SAME surgeon from TX Children’s that did Lisa's NEC surgery 24 years ago!!! What a coincidence!!!
Thank you so much for all of your prayers, they are keeping Hayden and the family strong. Please feel free to visit little Hayden any time (Lisa, Dustin, my Mom, and Dad can see him whenever they want to), and visitors can see him from 11:00-12:00 in the morning and 8:00-9:00 p.m. The only people who usually go during morning visits are my Mom, Lisa, and I-so I take the full hour because no one else normally comes. I’ll be happy to quit hogging all of his time when other people come to visit =)
I know visiting was a little hectic at first, but the “swarm” of people has faded, of course, and everyone is doing a FANTASTIC job of alternating visits, so if you have time-come and visit our little miracle! He is even more precious in person!
Love you all,
Krystal
He had his first bowel movement (through his stoma) late last night!!
An interesting tidbit: Hayden's surgeon, Dr. Bloss...is the SAME surgeon from TX Children’s that did Lisa's NEC surgery 24 years ago!!! What a coincidence!!!
Thank you so much for all of your prayers, they are keeping Hayden and the family strong. Please feel free to visit little Hayden any time (Lisa, Dustin, my Mom, and Dad can see him whenever they want to), and visitors can see him from 11:00-12:00 in the morning and 8:00-9:00 p.m. The only people who usually go during morning visits are my Mom, Lisa, and I-so I take the full hour because no one else normally comes. I’ll be happy to quit hogging all of his time when other people come to visit =)
I know visiting was a little hectic at first, but the “swarm” of people has faded, of course, and everyone is doing a FANTASTIC job of alternating visits, so if you have time-come and visit our little miracle! He is even more precious in person!
Love you all,
Krystal
Tuesday, April 1, 2008
Hayden opened his eyes!
Sunday morning, Hayden opened his eyes for the first time!! We were able to see them later that evening when his eye shades were off. He looked at Mommy this morning and it melted her heart!!!
A team of doctors evaluated him this afternoon...let's hope and pray for great results!!
Love,
Aunt Krystal
A team of doctors evaluated him this afternoon...let's hope and pray for great results!!
Love,
Aunt Krystal
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