Hayden is coming home soon

Hayden is coming home soon!! Yes, the news is so true…the day we have ALL been waiting for!!!!

Doctors told Lisa this morning, that if all goes well the next few days, Hayden should be coming home Monday or Tuesday!! Yes, THIS Mon or Tues, as in August 4th or 5th!!!! There is still a chance something could happen, and Hayden will need to stay, but let’s hope not.

We need those prayers going through the roof right now, so please pray pray pray for a full recovery so Hayden can FINALLY come home to his Mommy and Daddy!!!!!! Wow, it is finally happening for these amazing parents who NEVER gave up hope!!

A HUGE thanks to our Mom, Dawn, who visited Hayden every day with Lisa. She almost spent as much time at the hospital as Lisa has! She remained the rock of this family through these tough few months, especially for Lisa. So, THANKS SO MUCH MOM!!! Lisa has said that she wouldn’t know what she would have done without you!

I know that everyone is soooo excited about finally visiting Hayden at home, but it is going to be a difficult process. Doctors have informed Lisa that there can only be a couple people (maybe immediate family) that will be able to visit the home right away…we have to remember that his immune system is still weak and he is sooo susceptible to ANYTHING, including colds, coughs, pneumonia, and especially infection!! At the hospital, the room air is much more sterile than at home.

Lisa and Dustin ask to have total privacy the day Hayden comes home…as you can imagine, they want every single second with their precious baby without any distractions!!! Everyone has been so great and I know you will respect Lisa and Dustin’s wishes! Thank you so much!

When people are finally allowed to visit Hayden man, there can DEFINITELY be no babies or kids, as they have lots of germs…sorry Kaylee, I know you wanted to finally meet your cousin =(

If and when people are able to visit Hayden, your clothes must be clean and contain NO NO NO pet dander or cigarette smoke. Hayden is still susceptible to respiratory disease and various respiratory problems! Lisa and Dustin have given Gizmo to my Mom and Dad b/c they can have no pets with Hayden.

I will update the blog with more information (the exact date he’s coming home and when people can visit) when I get updated by Lisa.

Thanks so much you guys for your support and prayers!!!

P.s. HAYDEN IS FINALLY COMING HOME, YAY YAY YAY!!!

Surgery went well

Hayden's surgery went great today, thanks to God and everyone that has been praying for him. Also, thanks to the many family members who came to the hospital in support of Lisa, Dustin, and Hayden.

There are still possibilities that the shunt will have complications later, so please keep praying that the shunt will continue to be a success! Hayden had to be put back on a ET breathing tube, but will be off of it soon.

Looks like our litle fighter has amazed us yet again with his courage and strength.

As soon as I get new pics, I will post them.

Please Pray for Hayden!

Please please pray for Baby Hayden, tomorrow he is getting one of his shunts put in to drain his cysts! PLEASE pray that the portein does well with the shunt!!! This is a difficult and dangerous surgery, so please keep him in mind!

On a great note, he passed his swallow test today, which means the formula is not going into his lungs!! Docs think that maybe he has reallllly bad acid reflux.

I will keep you updated!!!

Tomorrow will be a really busy day for Lisa, Dustin, and my Mom so if you have any questions, please call me instead of them. Thanks!!

Love,

Krys

New Pics of our Miracle Baby!!!

7-24-08 at TXC

7-24-08

7-23-08

7-21-08

More Updates

Hayden was taken to TXC by ambulance today, with Mommy and Grandma close behind!! They say the hospital and staff are very nice, even though parking is $11 a day!! Hayden is well worth it, though =)

There are a few surgeries Hayden will undergo in the near future. The 1st one will be placing a temporary tube in his head/brain to drain the fluids out (instead of tapping him so much). The 2nd surgery (HOPEFULLY by Tues) will be to drain/remove his cysts, and, of course, a surgery later to implant the shunt.

It may take until Tues to perform the surgery because docs need to reevaluate him...a second opinion can’t hurt! They removed EVERYTHING off of his face today; Mommy was able to see her little man without all of the tape and tubes!! They even took him off of nasal canula, stating he did not need it any more!! He is doing great so far!! Wow, what an improvement!!!!!

Please continue to pray for our miracle baby!!

Change of Plans

Hey everyone! Plans have changed.

At last minute, UTMB informed Lisa & Dustin that they do not take their insurance, so Hayden can not go there. Lisa has worked her little butt off, and has got him accepted into Texas Children’s. HOPEFULLY he will be transferred today! Because of politics and such, TXC will be doing their own evaluations, MRIs, ect. This could take days.

After all evaluations and if TXC agrees to perform the surgery, Hayden will finally get the medical attention he so desperately needs and deserves. PLEASE continue to pray for our little chunky monkey, he needs all the prayers he can get!

We love you Hayden!!

P.s. Thanks so much to all that are praying for our lil man and supporting his parents, you deserve our many many thanks!!!!! Believe it or not, your positive comments and support raise their spirits, hopes, and the will to fight!

There is nothing stronger than a Mother fighting for the life of her child!

Please Pray for Hayden!!

Hello everyone!

Hayden is having brain surgery (to remove/drain cysts) hopefully tomorrow. He is being transferred to UTMB tomorrow morning from Clear Lake Regional. They really wanted him to go to Texas Children’s, but they did not have an opening for another week, and Hayden needs this surgery now. Please pray for a safe roundtrip and successful surgery!!

I hope everyone is keeping up with Hayden’s progress with his site. His family really appreciates the support. Please go leave positive comments for Lisa and Dustin, they enjoy reading them!!!

We were hoping for Hayden to come in a couple of weeks, but because of this new obstacle, it may be delayed. Please keep praying for Hayden and his family, as they are very stressed and concerned, as you can imagine. He is 4 months and 2 days old!! What a big boy!

We will update his status, so stay tuned =)

**To all of my preggo friends and friends with healthy children: Please never take them for granted, or take the fact that you can carry your child for 9 whole months. At times, pregnancy and rowdy kids can become stressful, but take a moment to reflect on how lucky you really are**

Thank you!!!

Hayden Man!

Daddy & Hayden

Just aswingin'


Just to let everyone know, Hayden is doing GREAT!!! Lisa & Dustin have been able to feed him a couple of bottles, and he is drinking 3 bottles every 24 hours...he sure does enjoy that over his feeding tube! Lisa and Dustin are also able to hold him every time they visit...which is every day!!!

He has his own crib and swing in the NICU!!! You should see him go, what a cutie pie!

Hayden is already ready to get up & walk, using his legs during physical thearpy!! He is really amazing all of us! It is now becoming so very clear on how much of a miracle Hayden really is. His doctors told Lisa that he had a 1% chance of survival, compared to other infants with his difficulties. What an amazing fighter!!! Goes to show how much prayer really works!

We are still waiting patiently for Hayden to come home, please keep praying for him!!!

Hayden's Grandma B (Brenda) and I made a slideshow of Hayden's journey thus far, and you can watch it at:

http://www.photodex.com/sharing/viewshow.html?fl=2999761&alb=0

Thanks so much for keeping up with his blog, your love & support keeps us going!!!

P.s. Don't forget about Lisa's shower this weekend at Kim's (at 3:00)!!! It will be a blast! Let's make sure Hayden will have what he needs when he gets home!! They are registered at Babies-R-us and Wal-mart (the one on Fairmont has more of a selection than the one on Spencer)!!!


His first REAL bath!! Mommy got to help!!

SO sleepy after my bath!!

He's back!!

Hayden is back on the canula (since last night)...keep it up our lil' chicken nugget!!!

Today has been a BIG DAY for our lil Hayden Man!!! He DRANK HIS FIRST BOTTLE TODAY!! As long as he stays on the nasal canula, he will be drinking a bottle once a day (to get used to it) then more later!! He drank the entire bottle, all 25 cc’s!!!! Pretty soon, Lisa & Dustin will be able to feed him through the bottle!

We are sooo proud of you Hayden!! Keep strong, we are all praying for you!

Hayden is a BIG BOY!

Good afternoon! Hope everyone had a safe and fun 4th weekend!!

Our little big man is now up to 7 lbs 12 oz and a little over 20 in. long!!! He’ll be big enough to ride roller coasters before we know it!!

Unfortunately, Hayden was too tired to stay on the nasal canula, but is still on 4 peep (nasal prongs/CPAP). Hopefully, after he rests, they will put him back on the canula next week...whenever he is ready! His little organs, muscles, and brain have had to work twice as hard with only ½ the developmental time, so they get pretty tired easily!

GUESS WHAT??? Hayden is in his OWN CRIB at the NICU!!! He is big and well enough to stay in his big-boy bed!! Lisa went out right away to get him his own mobil and other necessities; she and Dustin both are so proud of their little fighter!!

On another good note, the ROP surgery (to prevent blindness) has worked!!

Hopefully the protein levels in his brain will decrease so Drs can put Hayden’s shunt in and he will be able to COME HOME!!!! Please keep praying and visiting, the whole family appreciates it!!! Thanks to Grandma Susan for visiting today, Hayden loves to see you!

Love to everyone!!

P.s. Don’t forget about the upcoming showers!!!

Happy "Gestational" B-Day Hayden!!!

Hey all you Hayden fans, sorry it’s been so long since the last post!

Hayden is now 7 POUNDS 4 OUNCES!!! Wow, almost 4 times his birth weight. Keep going big man!!

Today, July 2nd, was his official due date (he is 103 days old, or 3 months 10 days old!) but not even 1 day old gestational. He continues to amaze all who love him and pray for him! He has truly shown all of us how to be a fighter. His parents have shown us pure love and dedication while never losing hope or becoming pessimistic, even when everything seemed so unfair and wrong. They never wallow in self-pity or blame anyone for this tough situation, even though we couldn’t blame them if they do. I think we could all learn something from this courageous family.

Even though Hayden is getting so big, the battle is not over. His protein levels in his brain (which have to be below 200 before he comes home) are at 3500. They think it is due to the blood clots in his brain (from the bleeds) dispersing.

Hayden was able to stay on the nasal canula for 28 hours, but was just too tired to do it all on his own. He is currently breathing room air through nasal prongs, and will try for the canula when he is ready. Maybe then he will begin to drink from a bottle!!

Thanks to the many visitors Hayden has received lately, Auntie Sara, Grandma B & Grandpa B (Brenda & Bryan), Aunt Cleo, Tish, and everyone else. And of course, MANY MANY MANY thanks to Lisa’s parents who visit Hayden on a daily basis, sometimes even twice every day; without everyone’s support, it would be an even more difficult journey for the Vorse family.

And remember, whenever you are feeling down and out, gain strength from this little family and recognize the courage it must take them to thrive so courageously & unselfishly…God has a plan for us all and sometimes hard times are a blessing in disguise. I truly believe that God must think extremely highly of Lisa & Dustin to bless them with such a special little man. Keep thriving Hayden, you’ll be home before you know it!!

Don’t forget, Lisa’s showers are fast approaching!! If you have not received your invitation by Friday, please send me your address and we'll get one to ya!! Let’s make sure Hayden has everything he needs when he gets home =) Thanks sooo much!!!

Love to all!!!

Aunt Krys