Hello everyone,
Hayden went into the hospital Tuesday, and had emergency shunt surgery in the middle of the night Tuesday. His shunt dysfunctioned (not draining properly), so he has a new pump and a new cathater (he had to be opened up on his head AND tummy).
He is still in the PICU because his heartbeat is irregular and his stomach isn't draining the brain fluid properly. We don't know if he needs another surgery today or not...just waiting on answers. He is a fighter, like always.
Lisa and our Mom have been troopers, sleepinging (hardly) in chairs in the ICU--never leaving Hayden's side.
Please pray for our little man, he really needs them right now.
Thursday, July 30, 2009
Wednesday, July 22, 2009
Hat's Off To Krystal!
Hat's off to Krystal! She stayed focused and never had a nervous break down. You really are a amazing young lady. I personally want to thank all the family and friends who worked so hard before, during and after the event. I have never worked with a better group of people! Eveything ran so smooth. Thanks to the muscles too. William, Wayne, Jeremy, Eric, Cody, Dylan and so many more... Also to our auctioneer Cory who made the auction such a success and so much fun. I enjoyed meeting everyone and hope to stay in touch. You truly are Hayden's Angel's!!! What a great day.
Starla
Starla
Tuesday, July 21, 2009
We need to thank Krystal too!
That girl worked so hard on this, you would've thought the money was for her, lol! But she did an awesome job at organizing our meetings and keeping in touch and keeping up with all the thousand little details. Guess it's that teacher thing!
She really loves her sister and baby Hayden and we all were witness to just how much. All three of them inspired me and kept me going on this benefit. They are wonderful people and I'm glad to call them my family!
Brenda
She really loves her sister and baby Hayden and we all were witness to just how much. All three of them inspired me and kept me going on this benefit. They are wonderful people and I'm glad to call them my family!
Brenda
Thanks to Everyone!
Thanks so much to everyone that donated their time, product, and money for Hayden's benefit! It was definitely a lot of fun, and a success! We raised money for Hayden's special needs trust that will definitely help purchase much needed medical equipment and so forth!
To the people and businesses that donated: Thank you so very much for your gracious donations! Without you all, we wouldn't have been able to raise the money for our sweet little Hayden!
To the people who came: Thank you so much for your support! We appreciate you coming out and spending your Sunday with us! We all hope you had fun and enjoyed the time spent at the Baby Hayden Benefit!
To our volunteers: You rock! We couldn't have done it without all of you! There are a couple of people I think that didn't take a break all day (because they wanted to keep working!!) Wow! We appreciate all of the hard work and dedication you all put into this--trust me, it did not go unnoticed! The cookers stayed out ALL NIGHT Saturday night AND cooked and served ALL DAY Sunday! What would we have done without all of you? Thanks so much for your generosity and compassion...and that great BBQ!!!
To Brenda and Starla: We would not have been able to have a benefit without the help from you two! You both played such important roles in this entire process, and I appreciate your mentoring and dedication so much! I don't know what I would have done without you!!
To Lisa and Hayden: You two are the best duo I have ever met! Te most dedicated Mother and most precious son! I can't think of a more deserving pair than the two of you! Hayden truly is a blessing, and Lisa a Godsend.
If I have missed anyone, thanks so much to you as well =)
To the people and businesses that donated: Thank you so very much for your gracious donations! Without you all, we wouldn't have been able to raise the money for our sweet little Hayden!
To the people who came: Thank you so much for your support! We appreciate you coming out and spending your Sunday with us! We all hope you had fun and enjoyed the time spent at the Baby Hayden Benefit!
To our volunteers: You rock! We couldn't have done it without all of you! There are a couple of people I think that didn't take a break all day (because they wanted to keep working!!) Wow! We appreciate all of the hard work and dedication you all put into this--trust me, it did not go unnoticed! The cookers stayed out ALL NIGHT Saturday night AND cooked and served ALL DAY Sunday! What would we have done without all of you? Thanks so much for your generosity and compassion...and that great BBQ!!!
To Brenda and Starla: We would not have been able to have a benefit without the help from you two! You both played such important roles in this entire process, and I appreciate your mentoring and dedication so much! I don't know what I would have done without you!!
To Lisa and Hayden: You two are the best duo I have ever met! Te most dedicated Mother and most precious son! I can't think of a more deserving pair than the two of you! Hayden truly is a blessing, and Lisa a Godsend.
If I have missed anyone, thanks so much to you as well =)
Saturday, July 18, 2009
Sunday is the BIG Day!
Okay everyone, SUNDAY is the BIG day! 11:00 - 6:00!!!
Hope to see everyone there! It is going to be so much fun, I can't wait!
Thanks so so so much to everyone who has volunteered their time (blood, sweat, and tears...)to this benefit to make it GREAT for Hayden! We definitely couldn't have done it without you all!
Hope to see everyone there! It is going to be so much fun, I can't wait!
Thanks so so so much to everyone who has volunteered their time (blood, sweat, and tears...)to this benefit to make it GREAT for Hayden! We definitely couldn't have done it without you all!
Friday, July 17, 2009
Puppy start-up kit
We got a Japanes Chin puppy (10 weeks old) for the auction! It is a male with: food, kennel, collar, bed and more! He is CKC registered and comes with full papers.
Thursday, July 16, 2009
Autographed Boxing Glove - GEORGE FOREMAN!
We got an autographed boxing glove from George Foreman. Also his book that's autographed and an autographed picture! The stuff we are getting for this benefit auction is just amazing!!! Don't forget it's this Sunday! July 19th from 11am - 6pm.
Jimmy Burke Activity Center
500 W. 13th Street in Deer Park, TX
Read the previous posts below to find out more about what activities will be there and also about Baby Hayden.
Come out! You don't want to miss this!
Jimmy Burke Activity Center
500 W. 13th Street in Deer Park, TX
Read the previous posts below to find out more about what activities will be there and also about Baby Hayden.
Come out! You don't want to miss this!
Monday, July 13, 2009
Sunday, July 12, 2009
Kristin and her mom dropped off some AWESOME and some BRAND new items to the house today!
5 Foot Wooden bench--great for in or outdoors
3 Piece set with: Table, Mirror, lamp and decor
Sunflower trifold with accessories (Including BRANDNEW matching baskets, and table runner)
Antique-never been used 7 Piece Genoa Porsecain/brass Cooking Set
5 Foot Wooden bench--great for in or outdoors
3 Piece set with: Table, Mirror, lamp and decor
Sunflower trifold with accessories (Including BRANDNEW matching baskets, and table runner)
Antique-never been used 7 Piece Genoa Porsecain/brass Cooking Set
Saturday, July 11, 2009
Meeting!
The meeting went very well tonight, we got lots of commitments and auction items. Thanks to everyone who came and donated more time and help along with items for the auction and other things. We really appreciate it!
Time is getting short so we need to get the word out. Please send an email to everyone on your email address book that says please forward to everyone in their's about the benefit. Left click on the flyer below, then Right click on the flyer and save it to your computer to include in your email to others. Example:
Hi everyone:
I have been involved in a benefit that is coming up for a special needs child. See flyer below. We're looking for help for the day of the benefit. It would be just a few hours of your time. We also need auction items if you can get them to us before Friday. Or even just coming out, eating BBQ and enjoying the day. We're also taking donations if you would like to support that way. See the donation button to the right or you can send a donation to Shell Credit Union in Deer Park. Make checks payable to Hayden Vorse Trust. If you just can't do any of the above things to show support, will you please just forward this email to everyone in your email address book? Getting the word out is just as important.
Thank you!
A few more interesting items. We have "A night to remember" date night package which includes Limo Service, a night stay at the Westin Oaks Hotel, and dinner at a fancy restaurant. This package has an $800 value, you won't want to miss out on this one. We also have 2 - $300 gift certificates from Gallery Furniture. Oh and for the kiddo's, we are raffling off a swimming pool filled with toys.
Stay tuned for more items listed!
Time is getting short so we need to get the word out. Please send an email to everyone on your email address book that says please forward to everyone in their's about the benefit. Left click on the flyer below, then Right click on the flyer and save it to your computer to include in your email to others. Example:
Hi everyone:
I have been involved in a benefit that is coming up for a special needs child. See flyer below. We're looking for help for the day of the benefit. It would be just a few hours of your time. We also need auction items if you can get them to us before Friday. Or even just coming out, eating BBQ and enjoying the day. We're also taking donations if you would like to support that way. See the donation button to the right or you can send a donation to Shell Credit Union in Deer Park. Make checks payable to Hayden Vorse Trust. If you just can't do any of the above things to show support, will you please just forward this email to everyone in your email address book? Getting the word out is just as important.
Thank you!
A few more interesting items. We have "A night to remember" date night package which includes Limo Service, a night stay at the Westin Oaks Hotel, and dinner at a fancy restaurant. This package has an $800 value, you won't want to miss out on this one. We also have 2 - $300 gift certificates from Gallery Furniture. Oh and for the kiddo's, we are raffling off a swimming pool filled with toys.
Stay tuned for more items listed!
Friday, July 10, 2009
Kids will have plenty to do!!!
Come out and bring your kids! We will have face painting, games with prizes, bounce house, a magician, karate demos and snow cones. There will be so much to see and do you won't want to miss this. Most things will be inside in the air conditioning.
To help spread the word, please send this link to everyone in your email address book. If you're on Twitter, post about it there. If you have a Myspace or Facebook page, post the link there. Please help us get the word out!
Thanks,
The Benefit Team
To help spread the word, please send this link to everyone in your email address book. If you're on Twitter, post about it there. If you have a Myspace or Facebook page, post the link there. Please help us get the word out!
Thanks,
The Benefit Team
Raffle!
Did you know we are selling tickets to raffle off $3000 worth of furniture from Manvel Matress Furniture Gallery? You can buy your tickets now and you don't have to be present to win. 1 ticket for $5, 3 for $10 and (best deal) 10 for $20!
If you would like to purchase tickets, please call either number below:
281.787.7088
281.460.5295
(click on picture to enlarge)
If you would like to purchase tickets, please call either number below:
281.787.7088
281.460.5295
(click on picture to enlarge)
Thursday, July 9, 2009
Interesting Auction Items
We've got some autographed pictures. One is Dale Earnhardt, another is Roy Oswalt, and another is Jeff Green. And last but certainly not least our own Baby Hayden!!
Stay tuned as we start listing more items!!
You don't want to miss this auction and all for a great cause! Baby Hayden!!
Stay tuned as we start listing more items!!
You don't want to miss this auction and all for a great cause! Baby Hayden!!
Wednesday, July 8, 2009
Baby Hayden Benefit
(FLYER - Click to enlarge)
Hello our devoted Hayden followers!
The Benefit for Hayden is quickly approaching (JULY 19) and we are all so excited and anxious--can't wait to raise that money for his future!
Remember to keep spreading the word (and flyers)...ESPECIALLY in this next week! The more people that come, the more money we can put into Hayden's special needs trust!
REMEMBER: EVERY person counts and every person is equally appreciated!
Hope to see you at the benefit!
He sure has come a LONG way, hasn't he?
Hello our devoted Hayden followers!
The Benefit for Hayden is quickly approaching (JULY 19) and we are all so excited and anxious--can't wait to raise that money for his future!
Remember to keep spreading the word (and flyers)...ESPECIALLY in this next week! The more people that come, the more money we can put into Hayden's special needs trust!
REMEMBER: EVERY person counts and every person is equally appreciated!
Hope to see you at the benefit!
He sure has come a LONG way, hasn't he?
Sunday, July 5, 2009
HCN Online - Hayden's Feature
(Click the title above to be directed to his feature)
Hayden's feature was on the front page of the Deer Pak and Pasadena newspapers today. He is too cute, and we are all so proud of he and Lisa! Let's hope our gracious community reads his article and plans to come to his benefit!
Hayden's feature was on the front page of the Deer Pak and Pasadena newspapers today. He is too cute, and we are all so proud of he and Lisa! Let's hope our gracious community reads his article and plans to come to his benefit!
Friday, July 3, 2009
Baby Hayden
Hello everyone!
Thank you so much for your kindness and support! Hayden is doing great, and he is even going to be on the front page of the Deer Park and Pasadena Newspapers on Sunday, July 5th! He’s our little fighter and celebrity!
Please keep telling friends and family and reminding them about the benefit so we can raise money for his future!
Thanks again for all of your hard work! Our next meeting will be at my house on Juy 11th at 600! Hope to see you there!
If you are new to the blog, welcome and thank you so much for showing interest in Baby Hayden. He is the sweetest baby and has the most wonderful Mommy in the world. I will include a flyer for Hayden’s Benefit, which will be on July 19th at the Jimmy Burke Activity Center in Deer Park.
We would LOVE to see you there, so please tell your friends and family and bring your appetites! We are going to have great food and fun!
P.s. Haydn has his 1st tooth coming in!!! He is really getting to be a big boy!
Benefit Flyer - Click to enlarge
Thank you so much for your kindness and support! Hayden is doing great, and he is even going to be on the front page of the Deer Park and Pasadena Newspapers on Sunday, July 5th! He’s our little fighter and celebrity!
Please keep telling friends and family and reminding them about the benefit so we can raise money for his future!
Thanks again for all of your hard work! Our next meeting will be at my house on Juy 11th at 600! Hope to see you there!
If you are new to the blog, welcome and thank you so much for showing interest in Baby Hayden. He is the sweetest baby and has the most wonderful Mommy in the world. I will include a flyer for Hayden’s Benefit, which will be on July 19th at the Jimmy Burke Activity Center in Deer Park.
We would LOVE to see you there, so please tell your friends and family and bring your appetites! We are going to have great food and fun!
P.s. Haydn has his 1st tooth coming in!!! He is really getting to be a big boy!
Benefit Flyer - Click to enlarge
Monday, June 29, 2009
Dart Tournament
The dart tournament Saturday went great! We had 26 people play in the tournament, and MANY others come for support! It was alot of fun!
A BIG THANKS to: BJ, Kristen, & Ryan Toon for helping to organize and run the games!!
Thanks to: Ryan and Nikki Toon, who won the total money and DONATED IT BACK TO HAYDEN!
We raised:$530 in the tournament and $430 in donations, for a total of $960!!!!!!!
Thanks again for everyone who came and participated in raising money for Hayden! I'd have to say the tournament was a big success!!
The Final 4: Lisa, BJ, Nikki and Toon
Nikki and Ryan Toon winning the money and donating it to Hayden!
Lisa with the winers!
There were more people, but they accidently got cut off...oops!!!
A BIG THANKS to: BJ, Kristen, & Ryan Toon for helping to organize and run the games!!
Thanks to: Ryan and Nikki Toon, who won the total money and DONATED IT BACK TO HAYDEN!
We raised:$530 in the tournament and $430 in donations, for a total of $960!!!!!!!
Thanks again for everyone who came and participated in raising money for Hayden! I'd have to say the tournament was a big success!!
The Final 4: Lisa, BJ, Nikki and Toon
Nikki and Ryan Toon winning the money and donating it to Hayden!
Lisa with the winers!
There were more people, but they accidently got cut off...oops!!!
Thursday, June 18, 2009
Hayden's Scan Results
Hello everyone!
Hayden's appointment went well Tuesday. They took another scan of his brain and are still flabbergasted at Hayden's progress. They have absolutely NO medical explanation on how he is even alive. When Lisa asked how many cysts were still in his brain, the doctor commented that there were "over 100". Lisa compared the picture of his brain to a honey comb, with so many holes and black spots =(
Against all odds, some parts of Hayden's brain HAS grown back, but doctors are not sure it if is viable or not...only time will tell. All we know is that he is a resilient little fighter and an inspiration to us all!
That is why we so desperately need to be out there fighting for him and this benefit! I know we won't let him down!
Love you all!!!
P.S. The dart tournament is set!
*June 27 – 4:00 pm
*Corner Pocket Sports Bar - 5626 Red Bluff in Pasadena
*$20 Buy in
*Blind Draw
*1/2 of winnings and 1/2 drink sales donated to Hayden
*Open to the public
Here is the flyer Brenda created for us! Tell everyone you know to come--it will be a fun way to help raise money for Hayden's future!!!
Cick to enlagre
Hayden's appointment went well Tuesday. They took another scan of his brain and are still flabbergasted at Hayden's progress. They have absolutely NO medical explanation on how he is even alive. When Lisa asked how many cysts were still in his brain, the doctor commented that there were "over 100". Lisa compared the picture of his brain to a honey comb, with so many holes and black spots =(
Against all odds, some parts of Hayden's brain HAS grown back, but doctors are not sure it if is viable or not...only time will tell. All we know is that he is a resilient little fighter and an inspiration to us all!
That is why we so desperately need to be out there fighting for him and this benefit! I know we won't let him down!
Love you all!!!
P.S. The dart tournament is set!
*June 27 – 4:00 pm
*Corner Pocket Sports Bar - 5626 Red Bluff in Pasadena
*$20 Buy in
*Blind Draw
*1/2 of winnings and 1/2 drink sales donated to Hayden
*Open to the public
Here is the flyer Brenda created for us! Tell everyone you know to come--it will be a fun way to help raise money for Hayden's future!!!
Cick to enlagre
Tuesday, June 16, 2009
Dr visit and Benefit news
Happy Tuesday to everyone! Hope everyone is over the Monday blues!
Lisa and Sara took Hayden to Texas Childrens for a check-up on his new shunts...let's wish him luck!! We love you Hayden!
Just a reminder, that Saturday (June 20) at 5:30 at Krystal's house is out 4th and a VERY important meeting...I hope you can all make it! I promise it won't take up too much of your time =) My address is: 10111 Belfast in LaPorte 77571
BJ is confirming the final details with the dart tournament for JUNE 27...I will post when I receive all of the info
Just gona post a flyer again:
Lisa and Sara took Hayden to Texas Childrens for a check-up on his new shunts...let's wish him luck!! We love you Hayden!
Just a reminder, that Saturday (June 20) at 5:30 at Krystal's house is out 4th and a VERY important meeting...I hope you can all make it! I promise it won't take up too much of your time =) My address is: 10111 Belfast in LaPorte 77571
BJ is confirming the final details with the dart tournament for JUNE 27...I will post when I receive all of the info
Just gona post a flyer again:
Friday, June 12, 2009
Hanging out!
Hello everyone!
I'm at Aunt Krystal's house today, missing my Mommy while she's at work and my Grandma while she's in Virginia!
Thanks to everyone that has been helping with my benefit, you have no idea how much my family appreciates it! Let's help raise some money to secure my future and get me the things I will need later in life!!
Love you all!!!
Thanks again so very much, Every PERSON, every DONATION, every DOLLAR counts!
*If you have never met a child with special needs, your heart had never really been opened--Starla
Thursday, June 11, 2009
New Paypal Button
We have our new Paypal button for those who wish to donate money. Paypal is the easiest and most secure way to pay with your credit or debit card on the internet. You don't have to sign up with Paypal to be able to use their site to donate. The amount has been left open so you are free to donate any amount you wish. All donations are kept private and we want you to know that we appreciate any amount given.
Thank You!
Thank You!
Wednesday, June 10, 2009
For our NEW Members
Hello everyone! First off, I want to thank you for helping us secure Hayden's future!!! Your generousity and support means so much to our Hayden and our family!
Because it will take lots of work and will need all the help possible, Brenda made a forum to help keep track of Hayden's benefit. This is a GREAT and organized place (internet site) where we can keep track of everything, for example: food, venue, donations, etc. We can throw ideas around and keep them all organized! Here is the address:
http://s1.zetaboards.com/Hayden/index/
I know it's long but it's free. The only rule is to join using your REAL first name and last name. Since we all will know each other, it will be easier that way. So go look it over, tell us what you think!!! PLEASE feel free to go to the forum and post ideas, news, etc--that is why it is there!! EVERYONE is welcome!!
Once you register and log-in, you can bookmark the page and it should keep you logged in on your computer. (On AOL, click the little heart and click "add to TOOLBAR" then enter Hayden under the symbol and it will be in your toolbar across the top: Accessible with one-click)
The more people to become involved, the better! You never know who knows who till the word starts spreading!!!
Lots of News
Hello everyone!
Thanks to everyone who made the last meeting, we really appreciate your support!
Our next meeting will be on Saturday June 20 at 5:30 pm. I know how busy everyone is, but we REALLY need everyone to attend! The benefit is on July 19th and we still have A LOT of things to do!
I have been going to businesses and am finding that many people are not able to donate…I’m getting about 1 YES in every 10 NOs, so if everyone was out asking, we could really be getting more things for the auction! Like Starla said, treat your folder with your flyes in it like your “baby”—take it everywhere you go. If you run to get fast food, ask for a donation! If you go shopping for clothes, ask! It only takes a couple of minutes, but could really change Hayden’s life forever. Just ask for the manager, give him/her a flyer and ask if the company would be willing to donate for a good cause!
BIG NEWS!!! We finally got the TRUST account open, yay!! Lisa and I went to the lawyers and Shell Federal Credit Union and got it done!! The official name for the trust is: Hayden Vorse Trust (if anyone wants to write a check).
Brenda put a DONATE button on the blog so people can donate directly from the blog page!!!
A BIG thanks to Christina and Jackie and the volunteer group at Shell Federal Credit Union!!! They called Lisa and I today ad WANT TO HELP with the benefit!! Talk about great people! There are 20-25 people in the volunteer group and many of team want to help at the benefit! They have been passing out flyers in the community and generating interest and spreading the word! Wow, Hayden sure has some angels out there!
The dart tournament is set for June 27 (a couple Saturdays away)..we are still working out the details and will get back to you!!!
Thanks again to everyone that is helping to secure Hayden’s future…we couldn’t do it without you, every person counts!
Keep spreading the word and selling those raffle tickets
Thanks to everyone who made the last meeting, we really appreciate your support!
Our next meeting will be on Saturday June 20 at 5:30 pm. I know how busy everyone is, but we REALLY need everyone to attend! The benefit is on July 19th and we still have A LOT of things to do!
I have been going to businesses and am finding that many people are not able to donate…I’m getting about 1 YES in every 10 NOs, so if everyone was out asking, we could really be getting more things for the auction! Like Starla said, treat your folder with your flyes in it like your “baby”—take it everywhere you go. If you run to get fast food, ask for a donation! If you go shopping for clothes, ask! It only takes a couple of minutes, but could really change Hayden’s life forever. Just ask for the manager, give him/her a flyer and ask if the company would be willing to donate for a good cause!
BIG NEWS!!! We finally got the TRUST account open, yay!! Lisa and I went to the lawyers and Shell Federal Credit Union and got it done!! The official name for the trust is: Hayden Vorse Trust (if anyone wants to write a check).
Brenda put a DONATE button on the blog so people can donate directly from the blog page!!!
A BIG thanks to Christina and Jackie and the volunteer group at Shell Federal Credit Union!!! They called Lisa and I today ad WANT TO HELP with the benefit!! Talk about great people! There are 20-25 people in the volunteer group and many of team want to help at the benefit! They have been passing out flyers in the community and generating interest and spreading the word! Wow, Hayden sure has some angels out there!
The dart tournament is set for June 27 (a couple Saturdays away)..we are still working out the details and will get back to you!!!
Thanks again to everyone that is helping to secure Hayden’s future…we couldn’t do it without you, every person counts!
Keep spreading the word and selling those raffle tickets
Friday, June 5, 2009
I'm ticklish!
Hi everyone! I'm doing great and want to thank you all so much for helping with me benefit!!!
Wednesday, May 27, 2009
Hayden's EEG
Hayden is getting an EEG to make sure the new shunt-like tubes are working.
He is doing well after surgery. Lisa did have to take him to the ER Friday because his head was swelling (where they had to drill holes in his skull for the tubes)...but they said swelling may not go down for a few months.
So...keep praying for our little man!
also, I was thinking about having the 3rd benefit meeting on the weekend of June 6th sometime...maybe Friday because Haylee's B-day party is Saturday.
I'll keep the forum updated, Thanks!!!
Friday, May 15, 2009
Surgery
He is swollen from surgery...but a trooper like alwaysSurgery went well...doctors places 4 shunt-like tubes in Hayden's head to try to redirect the flow of fluid from his brain. Obviously, the last shunt revisions were not working so they are trying something new. The bandages have not been removed yet, but Lisa seems to think that the tubes are larger than the shunt catheter…poor baby, can’t ever catch a break.
They may let them come home today, depending on how well he is eating and how well the new system is working…and if there is no infection, God forbid.
Thank you so much for your prayers and thoughts…maybe one day we can just pray for him to have a good day- instead of praying that he recovers from surgery month after month. One day.
Love to everyone, and thanks again!
Wednesday, May 13, 2009
He is in Surgery
Hayden is in surgery right now...he was wheeled in about 2:30. Not only was his shunt "over-shunting", the past week or so...it became blocked last night and his head swelled. Lisa sure knows her son; she knew right away that there was an additional problem to the "overshunting".
They are trying something else other than the last shunt revision techniques...apparently it didn't work the last few times...They are putting 3 tubes in instead. Since his initial shunt surgery, Hayden has needed a shunt revision very 3 months- like clockwork …
Please pray for Hayden, Lisa, and our family…everyone sure needs it right now.
Thank you so much everyone.
Love,
Krys
They are trying something else other than the last shunt revision techniques...apparently it didn't work the last few times...They are putting 3 tubes in instead. Since his initial shunt surgery, Hayden has needed a shunt revision very 3 months- like clockwork …
Please pray for Hayden, Lisa, and our family…everyone sure needs it right now.
Thank you so much everyone.
Love,
Krys
Tuesday, May 12, 2009
Hayden Needs Surgery
Hello everyone.
Lisa has taken Hayden to TX Children's twice in the last 2 days, and just got a call that said he needs another (the 5th) shunt surgery.
Poor Lisa is beside herself as you can imagine. Please pray for a successful surgery and a quick recovery. Please pray for them both, as this may be one of those 9 day stays again...but we definitely hope not...we were really hoping that he was done with all of these surgeries.
I will keep you updated with the info as I get it.
Thanks
Lisa has taken Hayden to TX Children's twice in the last 2 days, and just got a call that said he needs another (the 5th) shunt surgery.
Poor Lisa is beside herself as you can imagine. Please pray for a successful surgery and a quick recovery. Please pray for them both, as this may be one of those 9 day stays again...but we definitely hope not...we were really hoping that he was done with all of these surgeries.
I will keep you updated with the info as I get it.
Thanks
Monday, May 11, 2009
Hayden
Hello Hayden fans =)
As most everyone knows, Hayden's surgery went well! Even better than expected, for once!! Lisa and our Mom were there for him throughout his surgery and recovery over the weekend. Way to go Hayden!
Lisa is, however, taking Hayden in this morning because he has been acting a little strange lately, (fever, irritable, refusing to eat)...all the signs that his brain cysts are growing or a shunt malfunction. BUT, let’s hope not! Maybe he is just constipated or something???
Preparations for the benefit are going well, thanks to everyone involved! For those selling raffle tickets, let’s try to get those things sold are turned in so we know if we need to print more or not!! =)
Thanks again, and please take a moment to say a little prayer for Hayden and Lisa…we all HOPE it is not one of those 9 day stays at TX Children’s again!!!
P.s…Lisa finally got to have Hayden home for Mother’s Day!! And we all know, Lisa is the world’s best Mommy!
As most everyone knows, Hayden's surgery went well! Even better than expected, for once!! Lisa and our Mom were there for him throughout his surgery and recovery over the weekend. Way to go Hayden!
Lisa is, however, taking Hayden in this morning because he has been acting a little strange lately, (fever, irritable, refusing to eat)...all the signs that his brain cysts are growing or a shunt malfunction. BUT, let’s hope not! Maybe he is just constipated or something???
Preparations for the benefit are going well, thanks to everyone involved! For those selling raffle tickets, let’s try to get those things sold are turned in so we know if we need to print more or not!! =)
Thanks again, and please take a moment to say a little prayer for Hayden and Lisa…we all HOPE it is not one of those 9 day stays at TX Children’s again!!!
P.s…Lisa finally got to have Hayden home for Mother’s Day!! And we all know, Lisa is the world’s best Mommy!
Tuesday, April 14, 2009
Hayden is having surgery
Hello everyone!!!
1st things 1st…Hayden is having surgery this Friday! He is being circumcised, and even though this surgery is usually no big deal—we all know Hayden’s past and his vulnerability to infection! Lisa and Hayden will stay at TX Children’s (their home away from home) for AT LEAST 3 days. If you have some time this weekend, maybe you could try to visit them for a little while? I don’t know HOW she sits up there all day for 3 days (with little sleep) all by herself…it gets really lonely on Sunday afternoon when you’ve been there all weekend alone.
Please continue to pray for little (or should I say, “BIG boy”) Hayden, and add in a few extra words about his surgery. We all know how his immune system is down, and even the slightest little cold could postpone his circumcision…this surgery is the rescheduled one. His first surgery was postponed due to a cold.
Okay, onto meeting news…the 1st meeting went GREAT…thanks so much to everyone that came to support Lisa, Hayden, and this great cause! For those who could not make it, we look forward to seeing you at the next one (May 2)!!!
Please go check out the BENEFIT forum to get updates about the planning process!!! It you type in: http://s1.zetaboards.com/Hayden/topic/1503282/1/
it should go straight there (IF you stay logged in).
Thanks so much, and keep on the lookout for updates!!!
Also, Hayden has 2 Dr. appts Wednesday…one for his eyes (A 3-5 hour process) and he is getting fitted for his helmet!!! He also has an appt on Thurs and surgery Friday…what a busy schedule!!! He sure is our little fighter!
Monday, April 6, 2009
1st Benefit Meeting
Hello everyone...now that the date (July 18th) and venue (Jimmy Burke Activity Center in Deer Park…500 West 13th Street) has been set up...it is time to have our 1st official meeting!
It is going to be at my house (10111 Belfast in LaPorte) THIS Saturday (April 11) at 4:00. It will be a very important meeting, and anyone who wants to be involved with the benefit is encouraged to come...especially those wanting to accept a "chairman" position =)
We need a chairperson for Activities, one for auctions and one for food. These CP's need to know what they are getting into and be ready to take on the responsibility of it. That means overseeing the volunteers and making sure they do their jobs. Organizing things before at the event. Posting things on the forum such as progress and questions. Clearing things with head chairperson, etc.
It sounds like a lot, but the more helpers we have, the less stress on everyone =) PLUS…we get to hang out together and play with Hayden!!!
There will be committee sign-up sheets (ie Food) and subcommittee sign-ups (ie Bake Sale).
It will be a very organized meeting and we hope to accomplish a lot! Also, there will be chips-n-dip and cookies, MMMMMMMMM =)
Thanks so much everyone...time to get thing rollin!!! The more help the better, and it will greatly appreciated...even the "smallest" support will help...little things add up!
Let’s remember why we are having a benefit in the first place, Mr. Hayden!!!
Please go to the forum and reply to the TOPIC so I can see who is hoping to come...anyone and everyone welcome! (http://s1.zetaboards.com/Hayden/topic/1466192/1/#new) If you are logged into the forum, this address will go straight there!
It is going to be at my house (10111 Belfast in LaPorte) THIS Saturday (April 11) at 4:00. It will be a very important meeting, and anyone who wants to be involved with the benefit is encouraged to come...especially those wanting to accept a "chairman" position =)
We need a chairperson for Activities, one for auctions and one for food. These CP's need to know what they are getting into and be ready to take on the responsibility of it. That means overseeing the volunteers and making sure they do their jobs. Organizing things before at the event. Posting things on the forum such as progress and questions. Clearing things with head chairperson, etc.
It sounds like a lot, but the more helpers we have, the less stress on everyone =) PLUS…we get to hang out together and play with Hayden!!!
There will be committee sign-up sheets (ie Food) and subcommittee sign-ups (ie Bake Sale).
It will be a very organized meeting and we hope to accomplish a lot! Also, there will be chips-n-dip and cookies, MMMMMMMMM =)
Thanks so much everyone...time to get thing rollin!!! The more help the better, and it will greatly appreciated...even the "smallest" support will help...little things add up!
Let’s remember why we are having a benefit in the first place, Mr. Hayden!!!
Please go to the forum and reply to the TOPIC so I can see who is hoping to come...anyone and everyone welcome! (http://s1.zetaboards.com/Hayden/topic/1466192/1/#new) If you are logged into the forum, this address will go straight there!
Saturday, April 4, 2009
Hello everyone...I'm so glad to see friends and family joining Hayden's benefit forum!!! Thank you so much, all of your input has been very helpful and valued while planning!
For those who have not signed up, please do! It will not be the same without you! It is quick, easy, and free! Just go to:
http://s1.zetaboards.com/Hayden/index/
and click on [REGISTER]...put your REAL name, and you're done! Can't wait to see you there!!
P.s. Please don't forget to check the forum frequently...there are always new posts being posted!
Wednesday, March 25, 2009
Hayden's Benefit
Hello everyone! First off, I want to thank everyone SO MUCH for coming to Hayden’s 1st birthday party…I think we can all agree it was the largest (as in people) b-day party ever =) Thank y’all so much, Hayden truly is loved and you guys are so appreciated!
I know that some people have been throwing the idea around of throwing Hayden a benefit. Brenda and I have been discussing it, and think it would be great to do this summer (June or July?) Because it is such a large task guess we should start somewhere. I am in the works to get the DPFD Rec hall (where Lisa and D got married).
Because it will take lots of work and will need all the help possible, Brenda made a forum to help keep track of Hayden's benefit. This is a GREAT and organized place (internet site) where we can keep track of everything, for example: food, venue, donations, etc. We can throw ideas around and keep them all organized! Here is the address:
http://s1.zetaboards.com/Hayden/index/
I know it's long but it's free. Brenda is going to have some business cards made up for it. The only rule is to join using your REAL first name and last name. Since we all will know each other, it will be easier that way. So go look it over, tell us what you think!!!
Once you register and log-in, you can bookmark the page and it should keep you logged in on your computer. (On AOL, click the little heart and click "add to TOOLBAR" then enter Hayden under the symbol and it will be in your toolbar across the top: Accessible with one-click)
The more people to become involved, the better! You never know who knows who till the word starts spreading!!!
I am going to research the “correct way” to ask for donations (from Wal-Mart, private businesses, etc) and will post it in the forum…we definitely do not want businesses “hit up” more than once! It could be GREAT publicity for companies, and hey-we are all doing this for a GREAT cause: Mr. Hayden’s future!
Hope to see everyone register with the forum and begin posting ideas…maybe we can have a meeting sometime in the near future:
1. To see who is all “on board” =)
2. To all be on the same starting point/page
Thank y’all so much! Can’t wait to get this thing started…wouldn’t it be so nice if we could help secure Hayden’s financial future to ensure he will have all of the things he is going to need? This would be one less stress on Lisa’s plate, and we ALL know she could use less stress =) She's is truly an inspiration to us all, and so is her BEAUTIFUL miracle "BIG boy"!!
And hey…who is gonna pass up a fun day with great food?
Love you guys...hope to see you on the forum!!!
Krystal
I know that some people have been throwing the idea around of throwing Hayden a benefit. Brenda and I have been discussing it, and think it would be great to do this summer (June or July?) Because it is such a large task guess we should start somewhere. I am in the works to get the DPFD Rec hall (where Lisa and D got married).
Because it will take lots of work and will need all the help possible, Brenda made a forum to help keep track of Hayden's benefit. This is a GREAT and organized place (internet site) where we can keep track of everything, for example: food, venue, donations, etc. We can throw ideas around and keep them all organized! Here is the address:
http://s1.zetaboards.com/Hayden/index/
I know it's long but it's free. Brenda is going to have some business cards made up for it. The only rule is to join using your REAL first name and last name. Since we all will know each other, it will be easier that way. So go look it over, tell us what you think!!!
Once you register and log-in, you can bookmark the page and it should keep you logged in on your computer. (On AOL, click the little heart and click "add to TOOLBAR" then enter Hayden under the symbol and it will be in your toolbar across the top: Accessible with one-click)
The more people to become involved, the better! You never know who knows who till the word starts spreading!!!
I am going to research the “correct way” to ask for donations (from Wal-Mart, private businesses, etc) and will post it in the forum…we definitely do not want businesses “hit up” more than once! It could be GREAT publicity for companies, and hey-we are all doing this for a GREAT cause: Mr. Hayden’s future!
Hope to see everyone register with the forum and begin posting ideas…maybe we can have a meeting sometime in the near future:
1. To see who is all “on board” =)
2. To all be on the same starting point/page
Thank y’all so much! Can’t wait to get this thing started…wouldn’t it be so nice if we could help secure Hayden’s financial future to ensure he will have all of the things he is going to need? This would be one less stress on Lisa’s plate, and we ALL know she could use less stress =) She's is truly an inspiration to us all, and so is her BEAUTIFUL miracle "BIG boy"!!
And hey…who is gonna pass up a fun day with great food?
Love you guys...hope to see you on the forum!!!
Krystal
Thursday, March 19, 2009
Hayden is Home
Wednesday, we took Mr. Hayden to TX Children ER because he showed all the signs of a shunt malfunction (the same signs that caused him to need all 3 shunt revision surgeries before)...sleepiness, vomiting, fever, refusing to eat, etc. Poor Lisa was so nervous that he needed to have yet another surgery to fix his shunt and that he would miss his 1st B-Day party =(
After all of the tests, scans, and X-rays...and waiting for the results all day...docs finally told us that he was just severely dehydrated (from the vomiting/refusal to eat)...NOT that this was great news, but it was better news than surgery! Lisa and Hayden stayed overnight so that he could be observed and get the fluids he needed, and came home this afternoon!
He is looking cute as ever (duh) and ready for his BIRTHDAY PARTY Saturday!! Hope to see everyone there!
Love yall!!
Sunday, March 15, 2009
Hayden's B-Day!
Hey everyone!
Hayden's 1st Birthday and party are coming up on March 21st! Can you believe he will be a year old already??? The party will be at my house at 2:00!
We are so thankful and blessed to have Hayden on this earth, after everything he has been through. He is definitely our litle fighter man!
If anyone is wondering, Hayden needs toys that light up and sing, diapers size 3-5, sleepers 9-12 mo., soft or classical CDs, and wears 6-9 mo. pants. I think he needs some socks, too =)
Thanks everyone, hope to see ya here Saturday!
Sunday, February 8, 2009
Update on Hayden's Surgery
Hello everyone!
Mr. Hayden's surgery went well Friday. Thankfully, he did not need an additional shunt! The catheter on his current shunt was not draining properly, so doctors removed it and replaced it with a new one.
Because of seizure activity, doctors needed to observe Hayden for a few days in the pediatric ICU (PICU) at TX Childrens. He has been doing alot better and finally was allowed to eat!!!! HOPEFULLY, Mommy and Hayden will get to come home tomorrow (Monday)!!
Thanks to the loved ones who have been there with Lisa and Hayden at the hospital, and the many well-wishers from home! A special thank-you to Aunt Lara, who rarely left their side for 2 days!!! It is amazing how strong a family becomes in times of worry and desperation. We have THE BEST family, ever!!
I WANT TO GIVE A BIG THANK-YOU TO EVERYONE THAT HELPED MOVE LISA AND HAYDEN!!! Lisa was approved for a 2-bedroom apartment recently. She was SO excited that Hayden will have his OWN room, and she was going to get to begin moving in this weekend. When Hayden needed surgery, Lisa, of course, put moving on the back burner.
Our cousin, Latisha (Tisha, Ditta, whichever name you call her =) began the process Saturday by spending ALL DAY AND NIGHT packing, wrapping, and cleaning (dishes, clothes, etc). She also went shopping for Lisa and Hayden groceries and other miscellaneous items that would make Lisa and Hayden feel right at home (when they get home).
The other big helpers, who moved everything from one apartment to another, were Sara, Tisha, Marshal, Brenda, Bryan, Jessica C., Frank, and Jeremy! Don't know WHAT we would have done without y'all! What wonderful and selfless people you all are!!! Thank you so so so much!!!
It was a long a tiring day, but the look on Lisa's face when she sees her new home is sooo worth it! She doesn't know exactly what we did...she just thinks we moved a couple of things! How exciting it will be to see her face when she is surprised!
Out of all the people in the world, no one deserves this more than Lisa and Hayden! (We just hope they don't move again for a long, long time =) ha ha ha
Thanks to everyone!!! Love you all!! Please pray for Lisa and Hayden's safe trip home tomorrow, Hayden''s first night to sleep in his own home since Wednesday and Lisa's 1st night to sleep in a bed since Wednesday (in their new apartment, I might add!!)
Mr. Hayden's surgery went well Friday. Thankfully, he did not need an additional shunt! The catheter on his current shunt was not draining properly, so doctors removed it and replaced it with a new one.
Because of seizure activity, doctors needed to observe Hayden for a few days in the pediatric ICU (PICU) at TX Childrens. He has been doing alot better and finally was allowed to eat!!!! HOPEFULLY, Mommy and Hayden will get to come home tomorrow (Monday)!!
Thanks to the loved ones who have been there with Lisa and Hayden at the hospital, and the many well-wishers from home! A special thank-you to Aunt Lara, who rarely left their side for 2 days!!! It is amazing how strong a family becomes in times of worry and desperation. We have THE BEST family, ever!!
I WANT TO GIVE A BIG THANK-YOU TO EVERYONE THAT HELPED MOVE LISA AND HAYDEN!!! Lisa was approved for a 2-bedroom apartment recently. She was SO excited that Hayden will have his OWN room, and she was going to get to begin moving in this weekend. When Hayden needed surgery, Lisa, of course, put moving on the back burner.
Our cousin, Latisha (Tisha, Ditta, whichever name you call her =) began the process Saturday by spending ALL DAY AND NIGHT packing, wrapping, and cleaning (dishes, clothes, etc). She also went shopping for Lisa and Hayden groceries and other miscellaneous items that would make Lisa and Hayden feel right at home (when they get home).
The other big helpers, who moved everything from one apartment to another, were Sara, Tisha, Marshal, Brenda, Bryan, Jessica C., Frank, and Jeremy! Don't know WHAT we would have done without y'all! What wonderful and selfless people you all are!!! Thank you so so so much!!!
It was a long a tiring day, but the look on Lisa's face when she sees her new home is sooo worth it! She doesn't know exactly what we did...she just thinks we moved a couple of things! How exciting it will be to see her face when she is surprised!
Out of all the people in the world, no one deserves this more than Lisa and Hayden! (We just hope they don't move again for a long, long time =) ha ha ha
Thanks to everyone!!! Love you all!! Please pray for Lisa and Hayden's safe trip home tomorrow, Hayden''s first night to sleep in his own home since Wednesday and Lisa's 1st night to sleep in a bed since Wednesday (in their new apartment, I might add!!)
Thursday, February 5, 2009
Hayden is having surgery
Hi everyone! It has been a long time since we have blogged, but that is because everything has been going so great.
Hayden developed a soft lump on the back of his head. Lisa and our wonderful Aunt Lara took Hayden to Tx Childrens to have him examined. (Grandma would have gone, but she broke her toe and is in a boot).
Unfortunately, Lisa was told that he needed a cat scan to determine what the problem was. Tomorrow, he will having an endoscopy (camera going inside his head) to get a closer look.
Doctors think that his cyst (the large one inside of his brain) has swelled and is causing the lump. They said that Hayden may need an additional shunt to drain the fluid.
We are not sure of much; all we know is that Hayden will be having surgery on his brain tomorrow.
Lisa and Hayden are staying at TX Childrens until this is all over and he is all better! They said they will be there at least a few days (I'm assuming if he doesn't need the shunt)
We all know the pain, stess, and emotional roller coaster Lisa has been through this past year...not to mention what poor little Hayden is going through. We want to thank everyone that has supported them and loved them any way possible. You have NO IDEA how much that means to Lisa and the family.
Lisa and Hayden got approved for their new apartment and are supposed to move in next weekend (Feb. 13). We are not sure if they will be home or not, but I would LOVE to move their things in for them!!! Moving is another added stress I don't want Lisa to have to deal with right now. PLUS, how awesome would it be to be able to bring Hayden home from the hospital to his new home already ready??? =)
I would appreciate SO VERY MUCH if anyone would be willing to help! She is only moving a few apartments down (in the same complex) to a 2 bedroom. PLEASE call or e-mail me if you are free and wanting to help...ANY help is appreciated!!!
Thanks so much for all of your support and love!!! I will keep everyone updated with Hayden's progress.
Please continue to pray for his successful surgery and speedy recovery!!!
Hayden developed a soft lump on the back of his head. Lisa and our wonderful Aunt Lara took Hayden to Tx Childrens to have him examined. (Grandma would have gone, but she broke her toe and is in a boot).
Unfortunately, Lisa was told that he needed a cat scan to determine what the problem was. Tomorrow, he will having an endoscopy (camera going inside his head) to get a closer look.
Doctors think that his cyst (the large one inside of his brain) has swelled and is causing the lump. They said that Hayden may need an additional shunt to drain the fluid.
We are not sure of much; all we know is that Hayden will be having surgery on his brain tomorrow.
Lisa and Hayden are staying at TX Childrens until this is all over and he is all better! They said they will be there at least a few days (I'm assuming if he doesn't need the shunt)
We all know the pain, stess, and emotional roller coaster Lisa has been through this past year...not to mention what poor little Hayden is going through. We want to thank everyone that has supported them and loved them any way possible. You have NO IDEA how much that means to Lisa and the family.
Lisa and Hayden got approved for their new apartment and are supposed to move in next weekend (Feb. 13). We are not sure if they will be home or not, but I would LOVE to move their things in for them!!! Moving is another added stress I don't want Lisa to have to deal with right now. PLUS, how awesome would it be to be able to bring Hayden home from the hospital to his new home already ready??? =)
I would appreciate SO VERY MUCH if anyone would be willing to help! She is only moving a few apartments down (in the same complex) to a 2 bedroom. PLEASE call or e-mail me if you are free and wanting to help...ANY help is appreciated!!!
Thanks so much for all of your support and love!!! I will keep everyone updated with Hayden's progress.
Please continue to pray for his successful surgery and speedy recovery!!!
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