Hayden's EEG

Hayden is getting an EEG to make sure the new shunt-like tubes are working.

He is doing well after surgery. Lisa did have to take him to the ER Friday because his head was swelling (where they had to drill holes in his skull for the tubes)...but they said swelling may not go down for a few months.

So...keep praying for our little man!

also, I was thinking about having the 3rd benefit meeting on the weekend of June 6th sometime...maybe Friday because Haylee's B-day party is Saturday.

I'll keep the forum updated, Thanks!!!

Surgery

He is swollen from surgery...but a trooper like always


Surgery went well...doctors places 4 shunt-like tubes in Hayden's head to try to redirect the flow of fluid from his brain. Obviously, the last shunt revisions were not working so they are trying something new. The bandages have not been removed yet, but Lisa seems to think that the tubes are larger than the shunt catheter…poor baby, can’t ever catch a break.

They may let them come home today, depending on how well he is eating and how well the new system is working…and if there is no infection, God forbid.

Thank you so much for your prayers and thoughts…maybe one day we can just pray for him to have a good day- instead of praying that he recovers from surgery month after month. One day.

Love to everyone, and thanks again!

He is in Surgery

Hayden is in surgery right now...he was wheeled in about 2:30. Not only was his shunt "over-shunting", the past week or so...it became blocked last night and his head swelled. Lisa sure knows her son; she knew right away that there was an additional problem to the "overshunting".

They are trying something else other than the last shunt revision techniques...apparently it didn't work the last few times...They are putting 3 tubes in instead. Since his initial shunt surgery, Hayden has needed a shunt revision very 3 months- like clockwork …

Please pray for Hayden, Lisa, and our family…everyone sure needs it right now.

Thank you so much everyone.

Love,

Krys

Hayden Needs Surgery

Hello everyone.

Lisa has taken Hayden to TX Children's twice in the last 2 days, and just got a call that said he needs another (the 5th) shunt surgery.

Poor Lisa is beside herself as you can imagine. Please pray for a successful surgery and a quick recovery. Please pray for them both, as this may be one of those 9 day stays again...but we definitely hope not...we were really hoping that he was done with all of these surgeries.

I will keep you updated with the info as I get it.

Thanks

Benefit Flyer- Click to enlarge

Hayden

Hello Hayden fans =)

As most everyone knows, Hayden's surgery went well! Even better than expected, for once!! Lisa and our Mom were there for him throughout his surgery and recovery over the weekend. Way to go Hayden!

Lisa is, however, taking Hayden in this morning because he has been acting a little strange lately, (fever, irritable, refusing to eat)...all the signs that his brain cysts are growing or a shunt malfunction. BUT, let’s hope not! Maybe he is just constipated or something???

Preparations for the benefit are going well, thanks to everyone involved! For those selling raffle tickets, let’s try to get those things sold are turned in so we know if we need to print more or not!! =)

Thanks again, and please take a moment to say a little prayer for Hayden and Lisa…we all HOPE it is not one of those 9 day stays at TX Children’s again!!!

P.s…Lisa finally got to have Hayden home for Mother’s Day!! And we all know, Lisa is the world’s best Mommy!